Category: gratitude

When Life is “One Holy, Messy Struggle”

Weary…I’m guessing either you feel it or someone you love does.

I looked up  the word “weary” in my little Random House pocket dictionary of synonyms and antonyms I’ve had since my college journalism days and synonyms include: exhausted, tired, fatigued, spent, impatient, dissatisfied, tedious, and irksome.

Any of those describe you or your loved one these days?

There are so many things for which I’m grateful, like grandkids nearby (with a cuddly new family member!). And yet there are so many hurts piling up.  A cousin enduring chemo; another one awaiting biopsy results. Friends burying their young son. Marriages on the verge of break-up. Christians without compassion for others created in God’s image. A massive stroke paralyzing a wonderful husband and father. And six months of pain/doctors/scans/therapies after my “treadmill takedown.” (But that’s a story for another blog.)

If I‘m honest, I’m sad and grieving in the midst of Thanksgiving week. Yes, I am weary.

Shannon Adducci, a self-described “wife, mom, singer-songwriter, worship leader, trauma-survivor, mountain-lover, and Christ-follower,” once blogged about her emotional struggles:

“I have been programmed through the years to think I should just be able to choose gratitude at all times and, in every instance, flip weariness or sadness on its head and replace it with the spirit of joy – with the help of a handy, hip-pocket Scripture, of course!

“And, certainly, there is a place for simply choosing joy and gratitude. I do it often. But it also is incredibly important to honor the deep emotions we might be experiencing, lest they fester unattended and infect our souls.

“So, what if it doesn’t have to be one or the other of these? Not joy instead of sadness. Or recovery in lieu of grief. Or breakthrough eclipsing stuck-ness. What if it is actually OK to be in it all at the same time? …

“What if it could all be one holy, messy struggle and me not feel guilty about it?...

“So, here’s the good news…Even in my utter weariness, Jesus offers me an invitation and not a rejection slip. ‘Come to me,’ He whispers. ‘Not after you recover, but in order to recover.’

“Jesus fully and gently acknowledges exactly where you and I are and encourages us to hang out with Him in our most depleted state.” *

Let’s cling to the truth in the words of the beautiful Christmas hymn, O Holy Night written in 1847 by Adolphe Adam:

Long lay the world in sin and error pining
‘Til He appears and the soul felt its worth
A thrill of hope the weary world rejoices
For yonder breaks a new and glorious morn.
Fall on your knees; O hear the Angel voices!
O night divine, O night when Christ was born
O night, O Holy night, O night divine!

Thank You, Lord, for coming to our weary world and calling us into Your presence where we can find rest.

*©2020 Shannon Adducci. Bold emphasis mine.
++++++++++++++++++++++++++++++++++++++++++++++++++
Open in your browser to hear the encouraging words in Shannon Wexelberg Adducci’s song “Whole Heart.”

 

Not Your Average Survivor

It’s no exaggeration to say that Tom Wilkinson is not your average survivor.

For one thing, he’s a 16-year survivor of stage 4 head and neck cancer. And secondly, he believes he knows exactly how and why he received that diagnosis.

Rewind to 2008 when Tom, then a 56-year-old brewers grains company vice-president was plagued with earaches and a sore throat.

“The antibiotics would knock it out for a while and then it was back,” he recalls.

In August of that year, Tom was ready to lead a team of mostly young people to Germany where they would minister to the locals through a “sports and English camp.” But the day before  departure, Tom’s  new Ear, Nose and Throat specialist called with his imaging results.

He said I needed to come in the morning for a biopsy, because he saw a tumor and I probably had cancer,” Tom remembers.

But Tom was a man on a mission–literally–and told the ENT he would get the biopsy when he returned. Ten days later he arrived for the procedure, but while he was away, a lump appeared on his neck and grew to golf-ball size.  A biopsy confirmed stage 4 tonsil cancer.

The first surgeon Tom and his wife Dee saw was pretty discouraging, so they sought out a doctor-acquaintance at their church–even though they had no idea what kind of physician he was.

The doctor said Tom “absolutely” should get a second opinion and offered to get him an appointment ASAP at the hospital where he just happened to be head of the ENT department!

An evaluation led to intra-oral surgery, a technique which uses a laser to cut through soft tissues without the usual scalpel trauma. It took 18 painstaking hours to remove his tonsils,  resect both sides of his neck and extract 43 lymph nodes.

Tom spent nearly three weeks in the hospital, followed by radiation and chemo which left him “pretty spent.” He lost 30 pounds in a month, but never needed a feeding tube thanks to Dee’s excellent management of his liquid nutrition.

At Tom’s 5-year appointment in 2013, his doctor pronounced him cured.

Like other cancer survivors, Tom is extremely grateful for “extra” time to have seen all six of his children married, 15 grandchildren born and celebrated 47 years of marriage.

Doctors said Tom’s cancer was a sexually transmitted one caused by high-risk HPV (human papilloma virus). Nearly all people are infected with HPV soon after becoming sexually active, but most infections are cleared by the body’s immune system. Studies show that multiple sexual partners increases the risk of HPV-related cancers.

“I had been wild and crazy in college (at Virginia Tech) before I came to know the Lord a few years later,” Tom acknowledges. “I had many years of indiscretions as a young man and it came back to haunt me.

“So I never struggled over why I had this: I knew why I had it,” Tom explains. “It was a consequence of my sin. I don’t believe it’s a punishment; it’s just a consequence,”

When I asked Tom what got him through the treatments and recovery, he quickly mentioned Psalm 145.

“Three or four people shared that psalm with us and it became our mantra,” he says. “I memorized it and still recite the first ten verses every day.”

I will exalt you, my God and King,
    and praise your name forever and ever.
 I will praise you every day;
    yes, I will praise you forever.
 Great is the Lord! He is most worthy of praise!
    No one can measure his greatness.
Let each generation tell its children of your mighty acts;
    let them proclaim your power.
Psalm 145:1-4

Perhaps not the average way to start the day…but then, Tom Wilkinson is not your average survivor.

++++++++++++++++++++++++++++++++++++++++++++++++++++++
Open in your browser  and click on  the “Watch on YouTube” arrow  to hear “Praise the Lord (Psalm 145)” by Bishop Jos Tharakan.

 

Good news (and some not-so-good): My oncologist has cancer Part 12

For those of us who know and care about Dr. Marc Hirsh, we can exhale once more.

His 9-month check up last week at Hershey Medical was good news again! Blood work and a CT scan confirmed that the very rare neuroendocrine tumor of thymine origin has not changed. The 5X3 cm mass still is in front of Marc’s heart and there are cardiac issues from the high-dose radiation, but four years after multiple doctors gave him only a few weeks to live, he is alive, well, and enjoying life.

“When I was diagnosed, I figured I could only have a few weeks left–I was very short of breath and a had a lot of symptoms,” he recalled. “This cancer is normally aggressive and the prognosis from all the experts was not good.

“But I no longer expect it has to come back, and now that it’s four years, I’m actually entertaining the possibility I may be cured.”

Meanwhile, Marc is thoroughly enjoying re-learning the classical piano music he played proficiently in elementary school and “finds music very spiritually uplifting.”

And now that he is retired, Marc has found more time to read in areas of interest such as theology, philosophy and science.

“Science is just learning about God’s creation,” he noted. “And I definitely have been feeling very good about life: relationships, family, opportunities to help people.”

Pink Out cancer patient fundraiser!

But even in the midst of good news, Marc and Elizabeth have experienced a new challenge, as she recently was diagnosed with Parkinson’s disease.

“It’s the first time in my life someone has told me that I have something that I can’t get over,” Elizabeth says. “That’s the hard part.”

Parkinson’s is a chronic disorder of the central nervous system that affects a person’s movements.

Not surprisingly, Elizabeth, my dear friend and prayer-partner for 30+ years is undaunted.

“I knew something was wrong for awhile, but all the tests eliminated everything else, so I was grateful it wasn’t more serious,” she said.

“It’s something I can live with,” she added, noting that she’s ” still functioning at a pretty high level and enjoying life” despite her non-dominant side being affected with weakness and tremors. Her regular self-care routine includes walking, swimming, stretching, good nutrition and small weights for strengthening.

And how has this chronic illness  affected Elizabeth’s faith?

I like to be in touch with the Lord all the time, but especially during a trial of any kind, I always feel closer to Him,”  she says. “I realize He’s right there with me and it brings a smile and a peace.”

Elizabeth also adds that Marc–her husband of 44 years–“has been very good to me” assisting with activities that normally need two steady hands.

Marc’s perspective on the subject is this: “Maybe God’s keeping me alive to take care of Elizabeth.”

Whatever the reason, Marc, we rejoice in your healing, and in God’s faithfulness to you both.

++++++++++++++++++++++++++++++++++++++++++++++++++
Open in your browser to hear the  inspiring song “Bound to Come Some Trouble” by Rich Mullins, Marc and Elizabeth’s favorite Christian artist. I think it perfectly sums up their faith, and I pray it encourages you today.

Absolutely Beating the Odds

My friend Bill Shrieves, 77,  always has been an overachiever.

A while back he and his wife bought a new in-home care franchise, rapidly growing it into a large, profitable venture. In his younger days, he completed the Marine Corps Marathon three times and just to prove he still could, did it again when he turned 70.

No wonder he decided he could survive a stage 4 pancreatic cancer diagnosis.

“I never really thought I was going to die,” Bill told me after we met last month at my “Morning of Hope” seminar on Maryland’s Eastern Shore.

The medical pronouncement of get-ready-to-die came in January 2011.

Yes, you read that right. As of this writing, Bill is a 13.5-year survivor of pancreatic cancer spread to the liver, making him once again in an elite group as the 5-year survival rate for stage 4 pancreatic is only 1-3%.

Bill’s journey began in November 2010 when an episode of dark urine led him to urgent care where at the age of 64 he was diagnosed with a pancreatic tumor.

The day before Thanksgiving he was at the University of Maryland, Baltimore for surgery called a Whipple procedure which removed the head of the pancreas, the first part of the small intestine, the gallbladder, and the bile duct.  (Only about 20-percent of pancreatic patients are eligible for a Whipple.)

Bill applied to a clinical trial for his post-op treatment, but a CT scan two months after surgery revealed bad news: he no longer was eligible for the trial because the cancer had metastasized to a handful of liver lesions.

“My oncologist told me ‘get your affairs in order because you probably won’t live until the end of the year’.”

Bill started a regimen called FOLFIRINOX, which combines three chemo drugs and a vitamin-B derivative to enhance their efficacy. By mid-March all the lesions except one were gone and in July it, too, disappeared.

After eleven rounds of chemo, Bill’s doctor followed him with scans for several years, but “at the 10-year mark my oncologist fired me!” Bill recalled with a laugh.

However, well before Bill hit that amazing 10-year mark, he was back to achieving again, and in 2013 founded a small nonprofit called Mid-Shore Pancreatic Cancer Foundation midshorepancan.org

“I really wanted to have an impact on pancreatic cancer patients locally,” he explained.

About 15 volunteers offer practical support to maybe a dozen patients each year, and talk or correspond with dozens more around the world who need encouragement. Funds are raised through evening 5K runs at a local golf course.

“We do things like pay bills for them–we even bought a set of false teeth for a lady!,” Bill said.

I asked him why he thinks he has survived when doctors and statistics said he would not.

“I do think optimism is an important thing and I also have a strong faith in God,” said Bill, who along with his wife Jean of 57 years, has two children, three grandchildren, and two great-grands.

“Every day I ask myself why God spared me and what am I supposed to do today,” he added. “I don’t know how someone can face a potentially life-ending illness without faith.”

(For more encouraging pancreatic cancer survivor stories, go to https://pancan.org/stories/)

++++++++++++++++++++++++++++++++++++++++++++++++++
Bill loves gospel music and he and Jean attend a small African-American church where they are the only  white folks. The song “Heaven is Looking Down on Me” is one he enjoys hearing his church’s men’s choir sing. So open in your browser, sit back, and be blessed by The Canton Spirituals’ rendition.

Incurable Cancer and God’s Goodness

If you ask my dear friend Pat Magness what’s getting her through a nearly three-year journey with incurable cancer–and remission from it–she will tell you: God’s goodness and Lee’s encouragement.

Both God and husband Lee were in Pat’s life long before the sobering diagnosis, but her love for each has grown much deeper.

Pat and Lee, college sweethearts and retired college professors, have been avid travelers for all their 57 years of marriage–visiting about 50 countries.

But their cancer journey has been the most difficult they’ve ever faced.

“I was diagnosed in July 2021, but I had terrible back pain for months,” Pat recalls, “so I knew something was really wrong.”

An MRI finally revealed the problem: two spinal fractures.

She was directed immediately to another hospital for emergency  surgery to stabilize her back and avoid any paralysis. Meanwhile, Lee was admitted to a different hospital with a “scary” cellulitis (bacterial skin infection)!

Pat’s extensive blood work and bone marrow biopsy revealed the culprit was multiple myeloma: a blood cancer that develops in bone marrow plasma cells.

With two short rods implanted in her spine, Pat left the hospital in a fitted back brace she wore for three months.

When both were released from their hospitals, they spent the next month with younger son Ethan and his family, who live in the same town.

“We had been independent, traveling the world and all of a sudden we couldn’t even take care of ourselves in our own home,” Pat explains.

Chemo began shortly and the cancer responded almost immediately. Soon doctors were discussing a stem cell transplant, even though at 74 Pat normally would be considered “too old.”

Vanderbilt-Ingram Cancer Center decided Pat was a good candidate for the procedure, designed to restore the body’s ability to produce new blood cells after treatment with the very high chemo doses.

A transplant is an ordeal lasting several weeks and includes constant monitoring and high risk of infection. Pat and Lee stayed at a nearby apartment and every day Lee insisted they walk back and forth to the center.

“It got really tough,” Pat remembers. “I would say ‘I don’t think I can do that’ and Lee would encourage me to try. We walked every day for six weeks and there was only one time he had to drive me.

“I credit Lee with saving my life,” she continues. “He made the beds, did the cooking and the driving–everything for me.”

Celebrating 2nd transplant anniversary

Follow-ups tests show the cancer to be in complete remission and Pat continues on a bi-monthly “maintenance” treatment. She admits it gets tiring to be “constantly confronting your own mortality–you can’t pretend there’s nothing wrong.”

But in those discouraging moments, Pat recalls the hope promised in Romans 15:13:

May the God of hope fill you with all joy and peace as you trust in Him,
so that you may overflow with hope by the power of the Holy Spirit.

When I asked what got her through the toughest times, Pat says it was “songs in the night” (Job 35:10)

A former church pianist, she “began to hear worship music, especially at night–it was so unusual.”

“No anxiety,  I just felt gratitude for life and for treatment,” she adds. “The song I heard most was ‘Goodness of God’.

“When you enter the cancer world, it helps to have things to live for and I just had so many things.”

Grandchildren’s high school and college graduations.  A new ministry praying for cancer patients. International traveling again. And last month accompanying us on our Mississippi riverboat cruise to belatedly celebrate our 50th anniversary.

Yes, the goodness of God.

++++++++++++++++++++++++++++++++++++
Open in your browser to hear Pat’s favorite song in the night–“Goodness of God” with CeCe Winans.