Category: caregivers

Jul 11

I Don’t Want to Take One Day at a Time

 

There are certain “encouraging” phrases spoken to people going through difficulties which drive me nuts.

“It’s all gonna work out.” (So you have a crystal ball and can see my future?)

“I’m sure everything’s going to be fine.” (Because nothing bad ever happens to nice people?!)

“Just take it one day at a time.” (Thanks, I’d rather skip this whole month!)

I imagine the person uttering these kinds of phrases feels better after saying them, but weary listeners–myself included–aren’t necessarily cheered.

But despite my aversion to these cliches, I must admit that each does have an element of truth. Whatever trouble is happening will be worked out…eventually. I’m just not positive that each of us will see how it gets worked out in our lifetime. And everything will be fine in the sense that the things which really matter most–those of eternal value–can never be lost.

And as much as much as I don’t want anyone saying it to me right now as my husband and I walk through his health crisis, I have been admonishing myself: Just take it one day at a time.

Our grandchildren Ben and Abby have helped me keep that singular focus by making my husband a calendar to countdown the days remaining in his six weeks regimen of daily I.V. antibiotics. Ben, almost a kindergartener, drew the numbers (frontwards twos are overrated!) and Abby, almost a preschooler, helped decorate the background. (I guess 22-month-old Jack’s contribution was not ripping it up!)

Every day my husband and I smile as we rip off a calendar sheet and continue the countdown (Well, except for today as I write this. His PICC line won’t flush so I’m waiting for a nurse to come out and troubleshoot and hoping we are not headed to the hospital!)

It’s so hard to concentrate only on today. My rational mind wants to focus on the fact our entire summer is basically shot because my husband can’t walk. My brain keeps zeroing in on the fact the fall season is not going to be much better as he faces months of rehab. And it’s difficult not to dwell on the reality we’re facing many more months of sleep-interrupted nights, of too-tiring days and of what-if tomorrows.

But the truth is, it’s biblical to just take life one day at a time.

Remember in the desert when the Israelites complained God had forgotten them and they didn’t have anything good to eat? God responded by sending a delicious “flaky substance as fine as frost” which became known as “manna,” meaning “what is it?” And the instructions for gathering this daily sustenance were very specific.

Exodus 16:4: Then the Lord said to Moses, “Look I’m going to rain down food from heaven for you. Each day the people can go out and pick up as much food as they need for that day. I will test them in this to see whether or not they will follow my instructions.”

Here’s what happened next: “So the people of Israel did as they were told. Some gathered a lot, some only a little. But when they measured it out, everyone had just enough, Those who gathered a lot had nothing left over, and those who gathered only a little had enough. Each family had just what it needed.” (Exodus 16:17-18)

The people were further instructed not to try and save any manna overnight, but some didn’t listen. The next morning, the Bible says, their hoarded manna was full of maggots and smelled terrible.

Personally, I would love to stockpile a supply of manna for a whole month, or at least a week. I’d like some in my back pocket so I knew that what I needed to get through tomorrow and the next day was right there.

But it doesn’t work that way.

What the Israelites needed to get  them through the day had to be provided fresh by God each morning. And what you and I need for our journey in the desert needs to come daily from God’s hand by the power of His Spirit in us.

We are instructed to go to the Lord each morning and gather our daily sustenance–our manna–from Him. As we pray and move into His presence, we find His faithfulness, His love, His mercies, His faithfulness…our hope.

The faithful love of the LORD never ends! His mercies never cease. Great is his faithfulness; his mercies begin afresh each morning.  I say to myself, “The LORD is my inheritance; therefore I will hope in him!” Lamentations 3:22-23

O LORD, hear me as I pray; pay attention to my groaning. Listen to my cry for help, my King and my God, for I pray to no one but you. Listen to my voice in the morning, LORD. Each morning I bring my requests to you and wait expectantly. Psalm 5:1-3

So please don’t tell me I need to just take one day at a time–I’m pretty busy telling myself.

P.S. The nurse was able to troubleshoot the PICC line and get it working again. Hurray!

If the music video below doesn’t automatically load, pleas open this blog in your browser or click on this link https://www.youtube.com/watch?v=VNmSrbMxMFA

 

 

 

Jul 04

Celebrating a Second Chance at Life Together

 

My husband and I celebrate two anniversaries every year–not because we married twice, but because God gave us a second chance at life together.

We have celebrated December 29 for the past 44 years as the day two starry-eyed twenty-somethings said “I do” without realizing, of course, what they really were going to have to do. All we knew for certain was that we were confident we could serve God better together than either of us could alone.

And for the past 28 years we have celebrated July 2 as the day two teary-eyed young parents said “please, God!” without realizing, of course whether or not their prayers would really be answered they way they hoped. All we knew for certain was the surgeon was confident he could remove the cancerous tumor that day.

And the next year as that summer date rolled around again, and I still was recovering from my difficult six months of weekly chemo, my mind started reliving the nightmare of the year before. Because I didn’t want the date to be a painful reminder, I told my husband  I wanted to celebrate July 2 as the first anniversary of God’s healing touch on me. We still didn’t know if I would live or die (odds were about 40-percent that I would make it), but we were confident it was a good thing the cancer had been found and the tumor removed. And I wanted to celebrate every extra A.C. (After Cancer) year we were given to share life together.

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My husband normally gives me flowers for this “cancer-versary,” but I was sure he wouldn’t remember this year and that was okay.  After all, he was in a nursing rehab hooked up to I.V. antibiotics in his picc line 4.5 hours a day and still popping Oxycodone for knee pain. He was scheduled to come home Monday, July 2 and that was the only present I needed.

But on Saturday there was my youngest daughter, who lives near us, walking toward me with a bouquet of fresh flowers and her outstretched iPhone on FaceTime. 

“These are from Dad!” she happily announced as I saw his smiling face through cyberspace.

“You remember what Monday is, don’t you?” he asked.

As if I ever could forget.

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If you, like me, have been given a second chance at life, you know just what I mean.  Maybe it was a physical healing or perhaps you survived an accident. Maybe it was your marriage that was repaired or your relationship with one of your kids or grandkids. Maybe you conquered an addiction or you surmounted an abusive childhood. Maybe you have persisted in spite of poverty or pain. Whatever God has brought you and your family through, you have a second chance.

Make up your own “anniversary” to celebrate coming through the hurt as you trust God for whatever kind of healing He has in store for you–body, mind or spirit. I can’t promise you 28 “extra” years like my husband and I have been given, but I am confident that God loves you deeply and will be faithful no matter how unfair life has been. Celebrate each “extra” year, month, week, and day. Life is a gift, so we all are really on “borrowed” time here on earth.

My heart is confident in you, O God; my heart is confident. No wonder I can sing your praises!–Psalm 57:7

As for me, I look to the Lord for help. I wait confidently for God to save me, and my God will certainly hear me.–Micah 7:7

They do not fear bad news; they confidently trust the Lord to care for them.–Psalm 112:7

Rejoice in our confident hope. Be patient in trouble, and keep on praying.–Romans 12:12

If he music video doesn’t automatically load, try opening it in your browser or click on the link https://www.youtube.com/watch?v=G3qGssYNdkU

 

 

 

 

 

 

 

 

 

 

 

Jun 13

I’m Not Hanging on Any Longer

Last week I wrote about the struggle I was having to hang in there through a difficult season of stress–some of it bad, some of it good, but stress nonetheless. This week my husband and I are anticipating his knee “re-replacement” on June 18 (if it doesn’t get postponed again!) And as I write, we STILL don’t know the type/pervasiveness of the infection, the kind of surgery, or the extent of the rehab.  All we know is that a “picc” line and six weeks of IV antibiotics is guaranteed. It’s been a frustrating week and I need to be honest and tell you that I am no longer hanging on.

Instead…I’ve decided to let go.

I’m letting go of the need to appear to hold it all together. Letting go of the wish to be strong for everyone else. Letting go of the desire to be in control.

I’m letting go…so I can just be held.

I want to be held with my eyes on the Cross of Christ and not on the storm. Held in the promise of God’s never-ending love for me. Held in the secure belief that He is holding my falling-apart world together.

Yes, I’ve decided to stop holding on and just be held.

Perhaps you’d like to join me in letting go of the pain, the hurt, the disappointment, the confusion, the worry or the fear you face.  Please listen to the music video “Just Be Held” by Casting Crowns. The lyrics by John Mark Hall, Matthew West and Bernie Herms inspired this blog and express this truth more beautifully than I ever could.

Jun 06

What to Do When the Stress Never Ends

 

I just needed to hang in there until May 31.

I knew April and May would be ridiculously busy with extensive traveling, speaking engagements, ministering to cancer patients/caregivers, serving on faculty at writing conferences, milestone family celebrations, and teaching discipleship classes. But I just had to make it until May 31 and then my schedule would clear, I could relax and shift out of stressful, high-gear living. I knew I could do it.

But that was before we met with the doctor on May 30.

Unexplained, intermittent pain in my husband’s right knee–now a year-and-a-half since bilateral  replacements–led us to yet-another appointment with his surgeon.  An earlier CT scan confirmed what we already knew, i.e. something’s not right. Blood work did not indicate an infection, but the doctor wanted to aspirate some fluid “just to make sure.”

We were anticipating my husband would need a “revision” surgery, placing a small, steel rod beneath his tibia, which appeared to be slipping. It would be a much easier procedure than what he’d already been through and very little rehab required. in fact, the pain should be improved pretty much immediately.

We weren’t crazy about him having to have more surgery–he’s already had four procedures on that knee (two invasive and two arthroscopic)–but it didn’t sound like a big deal. Kind of like when you’ve survived cancer and then a doctor tells you that you have a kidney stone. The latter doesn’t seem nearly as daunting because of what you’ve already faced.

But when the surgeon withdrew the second tube of fluid, he said his “stomach dropped.” Instead of the clear color he expected, it looked yellow and cloudy–normally a sign of infection. Now the conversation shifted from “propping up” the tibia, to removing the entire replacement, cleaning out the area and at some point putting in a new joint followed by extended antibiotics and extensive rehabilitation.

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Just when I almost had made it to May 31.

Do you know that feeling? It happens when your life has been spinning out of control and you discover that the light you see at the end of the tunnel is really an oncoming train. Or when the roller coaster of bad news just keeps taking another plunge.  Or when you can’t seem to catch a break with your job, your finances, your kids, your………………..fill in the blank.

Maybe the bottom dropped out just when you thought you had gotten through it all. Just when you thought life would slow down. Just when you imagined the stress would end. Just when you could exhale.

But now, like me, you are waiting and wondering. How big and heavy is that train I see coming? Is there any chance to derail it? Can I possibly jump away before impact?

Good questions. And I don’t know any of the answers. But I do know how I prayed  after that doctor appointment  and how God answered.

“Lord, I feel terrible for my husband to have to go through pain and excruciating work AGAIN and honestly, I feel terrible for ME to have to go through exhausting caregiving again. It doesn’t make sense. And because I already know how difficult it may be, I can’t logically feel okay about it.

“But, I’m praying and believing that Your Holy Spirit can bring me a peace that passes all understanding. A peace that isn’t based on what I can see or know or even feel on my own, but simply on Your supernatural power to do more than I can ask or imagine.”

I prayed that last Friday. On Saturday morning when I read my Bible, words jumped off the page and encouraged my heart. On Sunday morning, the worship music lifted my spirits and the message was just what I needed to hear. Nothing had changed in our circumstances and no new information was obtained concerning our future, but it was well with my soul.

God will do the same for you and your loved one.

“Don’t worry about anything; instead pray about everything. Tell God what you need, and thank him for all he’s done. Then you will experience God’s peace, which exceeds anything we can understand, His peace will guard your hearts and minds as you live in Christ Jesus.” Philippians 4:6-7

P.S. Surgery–of some sort–is scheduled for 1 p.m. Friday, June 8. If I don’t blog for a while, it’s because I’m taking really good care of my guy!

If the music video below doesn’t automatically load, click here https://www.youtube.com/watch?v=iCR_Fa8YV2U

 

 

 

 

 

May 16

“You never really understand a person until you…climb into his skin and walk around in it.”

 

This To Kill a Mockingbird snippet of advice comes from Harper Lee’s fictional character Atticus Finch, a white attorney defending a black man falsely accused of rape in a racist 1930s southern community. Finch is adamant that his own children learn to treat everyone with compassion, regardless of their outward differences and admonishes them to try to see life from another’s perspective.  Image result for atticus finch free photos

Families and friends facing serious illness have differences that are much more than skin deep—very diverse personalities and coping styles, which often are misunderstood or unappreciated.

From my observations ministering to cancer patients and their families for more than 25 years, I can tell you that folks normally cope with cancer the same way they coped with life before cancer. The talkers keep chatting and the quiet ones stay mum. The feelers continue to emote and the thinkers keep on rationalizing. The people-oriented surround themselves with folks to spur them on and the task-oriented gather facts to try and problem-solve.

And guess what? That’s okay…because we need each other.

We need an arsenal of abilities and strengths to fight cancer or any other trial and each person in your inner circle of loved ones brings something different to the table. You will be far better equipped if you can appreciate your differences instead of allowing them to annoy or even divide you.

 

My husband of nearly 45 years and I are pretty much exact opposites in personality. I’m a task-oriented
extrovert and my mate is a people-oriented introvert. He’s easy-going and I have to plan to be spontaneous. If you are familiar with the Myers-Briggs type indicator, I’m an ESTJ and he’s an INFP. Even if you’re not familiar with the traits those 10 letters stand for, you can clearly see none of them matches up![1]

 

If you have ever taken the Gary Smalley Personality Types Inventory, I’m a lion-beaver and he’s a golden retriever-otter. A lion’s rallying cry is “Let’s get it done!” while an otter delightfully squeals “Don’t worry, it will all work out!” [2]  Image result for lion beaver otter golden retriever

And what I’ve learned from all this alphabet soup and animal labels is that sometimes my hubby needs to tighten up and sometimes I need to lighten up. And I’ve especially learned that at times I need someone like him who is very different than I am to help me hear from God.

Our Creator designed us to need each other and to be able to offer one another our talents, our gifts, our insights, and our special brand of encouragement. Please don’t let those differences become a wedge in your relationships. One of the primary ways Satan has to discourage families and friends facing serious illness is to get us at odds with one another. Don’t let that deceiver win.

Whether you are the patient or the caregiver, go ahead and consider the world from someone else’s point of view.  Take a deep breath, climb into his or her skin and walk around a little. You want and need people with personalities different from yours to help you find peace in the face of illness.

Live in harmony with each other. Don’t be too proud to enjoy the company of ordinary people. And don’t think you know it all!…Do all that you can to live in peace with everyone. Romans 12:16, 18 NLT

Don’t tear down another person with your words. Instead, keep the peace, and be considerate. Be truly humble toward everyone… Titus 3:2 The Voice Bible

Be joyful. Grow to maturity. Encourage each other. Live in harmony and peace. Then the God of love and peace will be with you. 2 Corinthians 13:11 NLT

Adapted from Peace in the Face of Cancer, copyright Lynn Eib 2017.

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[1]For more info about the Myers-Brigg Type Indicator personality inventory, go tohttp://www.myersbriggs.org/my-mbti-personality-type/mbti-basics/

[2]To take the free animal personality test, go to http://www.smalley.cc/free-personality-test/

If the music video below doesn’t automatically load, click on https://www.youtube.com/watch?v=_jg1Rm0Ig5o&vl=fr