Category: caregivers

Jul 29

“Just to Get through This!”

When Layne Lebo recently was diagnosed with cancer, his plan was “just to get through this.”

But he quickly realized God had a much bigger–and  better–plan in mind.

The journey actually started routinely enough.

“I was combing my hair and discovered a lump on my arm,” recalls Layne, then 58, and the lead pastor at a large church in Mechanicsburg, PA.

He felt fine and had been exercising quite a bit, so Layne didn’t really think it was anything of concern. At his next primary care physician check-up he casually mentioned the lump.  The doctor wasn’t particularly concerned either, but recommended an MRI just to be sure.

The ensuing biopsy results were delivered Feb. 6.

“The good news was I didn’t need surgery to have the cyst removed, but the bad news was I had non-Hodgkin lymphoma,” Layne explains.

The normally optimistic guy was reeling, but had to go home and share the report with Greta, his wife of 32 years. Together they “processed” the life-threatening diagnosis, including how best to share it with their three kids, ages 21, 25, and 27.

That same day Greta promptly wrote a list of six commitments she hoped the family would embrace:

Armed with that simple plan, Layne began chemo in April with his family–near and far–cheering him on.

Around that time, one of the pastors on staff at his church sent a text saying that as she prayed for him, she “strongly sensed” God would use this cancer journey to give him “more compassion for the suffering of others.”

“I think I’m a pretty nice guy,” says Layne, “but I find it challenging to relate and show compassion to others (facing) things I haven’t experienced.

“My life has been pretty easy…I probably have ‘compassion deficit’,” he adds with a smile.

But it wasn’t long before Layne began to see God softening his heart toward others.

Layne before chemo

He started reaching out to patient families at the cancer center and trying to encourage them by gifting a copy of 50 Days of Hope. (Layne admits that when he first was given that book, he didn’t plan to read it because he often finds “devotionals to be cheesy and shallow.” But eventually he did open it up and instead found God inspiring him through the pages.)

He also shared the book with his oncologist, a Christ-follower, who now has multiple copies in his waiting room for patients to read or take home.

Layne is especially excited to share his journey and help others find hope. He sends out personal updates, not only to his congregation, but to pastors in a large network of area churches he leads, as well as the school board on which he serves.

“I’m understanding scripture in a new way and feel like God is giving me insights for myself and for others,” he explains.

“God told me ‘I want you to look for armies of people who don’t know Christ’,” he adds.

Layne finished chemo a couple of months ago and radiation therapy last week, but won’t know for certain until next month’s PET scan whether the cancer is completely in remission.

Still “whatever happens my life is in God’s hands,” he declares. “I choose to place my trust in God whether I’m experiencing the sunshine of life or encountering storms.”

Sounds like Layne’s “compassion deficit” is no more.
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Open in your browser to hear one of Layne’s favorite songs: “Firm Foundation (He Won’t)”  with Maranatha Music.

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May 20

Celebration Time: My Oncologist has cancer Part 13

Well, the milestone that no physician thought possible–but for which family, friends and patients prayed–is here.

Tomorrow, May 22, 2025, is the fifth anniversary of Dr. Marc Hirsh’s diagnosis of a stage 4 very rare neuroendocrine tumor of the thymus!

Marc doesn’t have a party planned–life itself is enough of a celebration for him.

He and wife Elizabeth–plus Golden Retriever Boondock–recently returned from two weeks of traveling south in their camper van–a trip that  seemed impossible five years ago.

Marc clearly remembers how he felt when diagnosed at age 69.

“When I saw  that it had invaded into my heart and was in my lung, I was pretty pessimistic,” he recalls. “I was having a lot of trouble breathing, short of breath and in a lot of pain. In the hospital when Elizabeth asked me if it was curable, I told her I probably would be dead in three weeks.”

The “lowest point” emotionally came during his appointment with an oncologist at Johns Hopkins, where Marc was “very hopeful” he would learn something optimistic.

Instead, the doctor recommended an extremely toxic chemotherapy regimen which had “no data that it was curative.”

“I still have the oncologist’s report…and it said that if I didn’t do what they said, I’d be dead soon.”

But Marc refused the recommended treatment.

“I knew how incredibly toxic it was and I knew how weak I was,” Marc explains. “I knew how immuno-supressed I’d be and we were in the middle of COVID. I likely would have had to spend a lot of time in the hospital and the virus easily could have killed me.”

Instead he devised his own protocol of radiation/hormone therapy/oral chemo and what had been a grapefruit-sized tumor was the size of a lime at his check-up last year.

Last week on their trip, Marc celebrated his 74th birthday with a quick stop to purchase the “State Dessert of Maryland.”

“I bought myself a Smith Island Cake and I froze it and am eating a piece every day,” he confesses with a smile.

Elizabeth added that “he’s eating it all by himself” as she  gave up  sweets decades ago!

Marc says the realization that he might not quickly die from the cancer has dawned slowly.

“After about two or three years of (the tumor) being completely stable or slightly smaller. I started thinking I might actually be cured and there’s no active tumor left,” Marc explains.

“But I’m under no illusion,” he continues, “that the cancer definitely will never come back. I have a check-up June 10 so we will see how it looks.”

In the meantime, he has joined the local senior center’s twice-weekly over-60 basketball league.

“My wind is not what it used to be and the games are pretty intense and exhausting, but I’m enjoying it.”

When I asked Marc if he had any encouragement for those facing daunting health circumstances, he replied: “No matter what the so-called experts say, there are exceptions to generalities.

“Keep living for the moment, each day, each hour, each minute, and try to find meaning and joy no matter what the situation.”

Marc, who for 30+ years has shared his faith as a Jew who believes in Jesus as Messiah, says his diagnosis reminded him that others would see whether his actions were consistent with his words.

“I knew I had the opportunity to be courageous and to live life to the fullest,” he adds. “I could be an example of how to deal with what life hands you.”

(Life has handed Elizabeth a challenge, too, as she was diagnosed in 2023 with Parkinson’s Disease and needs Marc’s assistance with tasks she no longer can do.)

And at this 5-year milestone, for what is Marc most thankful?

“I’m incredibly grateful to God that He allowed me to be here for Elizabeth after all she’s done for me.”

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Open in your browser to hear Rich Mullins, Marc and Elizabeth’s favorite Christian artist, sing “Awesome God.” It seems appropriate on this 5-year “Cancerversary” to acknowledge our awesome God, and Rich sitting at the piano sharing a little about his faith before he sings reminds me of what Marc has done at our prayer support group concerts for the past three decades.

 

 

 

 

Mar 11

Are you as contented as a 2-year-old?

A dozen years ago I was on our deck serving an early morning breakfast to my oldest grandchild, Bauer, 2½. Thanks to my husband’s green thumb, the deck was bursting with beautiful blooms and as I stumbled around, chiding my foggy brain to wake up, little Bauer let out a small toddler sigh.

“It’s lovely out here,” he said with a sweet smile. “We have everything we need.”

Ah, contentment.

A bowl of multigrain Cheerios with milk, a Lightning McQueen sippy cup of juice, the beauty of nature, and a day with grandma—what more could you possibly want?

Maybe a clear PET scan? Perhaps a day without turmoil? How about not struggling with depression? No more medicine side-effects would be nice. An insurance company that didn’t balk at paying for what the doctor ordered would be really great.

It’s difficult to have childlike contentment when we live in a grown-up world where in the U.S. alone, a new cancer diagnosis is made every 30 seconds and  someone is identified with Alzheimer’s every 65 seconds. On top of those sobering statistics, every second the political fight rages around us seemingly unabated.

It’s not easy to find contentment while watching ourselves or a loved one deal with  physical/emotional/mental assault.

I remember many years ago, our dear friends, Don and Jean, found their world turned upside down when she was diagnosed with inoperable, stage 4 non-small cell  lung cancer. The retired schoolteachers frantically began searching for contentment.

“I was shocked,” she told me at the time. “I thought I was too healthy to get cancer. I was doing all the ‘right’ things to be a healthy person—never smoking, eating right, exercising, weight control, regular checkups and all that.”

After that frightening diagnosis, both Don and Jean tried to live in the moment, but the admonition to “take one day at a time” was “the opposite” of their teaching careers.

“As teachers we always had to look ahead and plan for another day,” they explained.

Learning to live one day at a time—and live it to the fullest (like contentedly watching a Maine vacation sunset)—was not an easy task.

“I think both of us in our own way just turned this whole thing over to God,” Don recalled. “For me it was putting total faith in His plan—knowing it’s a perfect plan—even if I didn’t understand it all.”

I’ve thought often about my grandson’s contented sentiment, especially mornings when I sit down with my to-do list, ready to organize everything that I think needs to be done that day! Sometimes I pause, smile to myself and say: “It’s lovely here and we have everything we need.”

Perhaps that’s a sentiment with which you could start your day?  The words of a toddler could be described as childish, but if you have total faith in a loving God, they can become childlike trust.

I remember that peaceful feeling when my newly delivered, just-nursed firstborn slept in my arms. All the hours of terrible back labor and exhaustion were forgotten. The future still was unknown, but with the psalmist I could say:

 

Of one thing I am certain: my soul has become calm, quiet, and contented in You.
Like a weaned child resting upon his mother, I am quiet. 
Psalm 131:2 The Voice Bible

And on this promise I still can rest:

Keep your lives free from the love of money and be content with what you have, because God has said,
“Never will I leave you; never will I forsake you.” Hebrews 13:5

 It is lovely here in my soul and with God I have everything I need.
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Please open in your browser to hear the music video “If I Got Jesus” by Ben Fuller. (I liked the words and music so much, I decided to ignore the grammar mistakes! 🙂 )

Dec 10

For Those Without the Christmas Spirit

It’s the time of year when people talk about “getting in the Christmas spirit.” I’m not exactly sure what is meant by that phrase, but it certainly implies feeling joy and excitement for celebrating this yuletide season (like attending a CeCe Winans’ Christmas concert!)

But what about those who aren’t “in” the spirit? Those who are deeply grieving  the death of a loved one. Those who are battling depression and can barely get out of bed. Those whose hearts are breaking over a family member’s addiction. Those whose spirits are crushed by a spouse’s betrayal.

What do weary folks like these need to do at this time of year?

That’s the situation in which my friend Connie found herself back in 2004 just three months after her 47-year-old husband Brad collapsed and died while doing light construction work at a Guatemalan orphanage.  Facing the Christmas season without her “best friend, soul mate and life partner” was overwhelming.

“I felt terrible that because of Brad’s death I did not want to celebrate Jesus’ birth,” Connie recalls. “There is an unending ache in my heart and I just want him to come home–I just want to see him again.”

Thankfully, a good friend gave her some insight that helped ease the young widow’s holiday pain.

He asked and answered a question for her: “Do you want to know what Jesus is doing this Christmas season?…He’s weeping. He’s weeping with you.”

I love that image. Jesus wasn’t urging Connie to get in the spirit of the season. He wasn’t chiding her for expressing the painful feelings. The Lord wasn’t disappointed that she couldn’t just put a smile on her face.  He didn’t care whether she had a Christmas tree or sent out holiday cards or baked cut-out cookies.

No, He wept with her because her world had been rocked and her spirit was crushed.

Perhaps that’s how you feel this holiday season or maybe someone you love is struggling to “get in the spirit” because of their painful circumstances. Or perhaps you have a little of the “Christmas spirit,” but think you should do more.

What a great time to show grace either to yourself or someone else.

That mental picture of Jesus weeping with Connie in her grief helped her believe that her Lord truly did understand what she was feeling…even if no one else really could. She stopped worrying about a holiday to-do list and instead prayed:

“Just for today, I need to see Jesus.
Just for today, I need to seek Jesus.
Just for today, I need to serve Jesus.”

She celebrated the Savior…without the Christmas spirit. And I believe all of us weary ones can too.

“Somewhere in your silent nightHeaven hears the song your broken heart has cried.Hope is here, just lift your headFor love has come to find youSomewhere in your silent night.”

 

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Open in your browser and click “Watch on YouTube” small arrow in bottom left corner to hear the beautiful song “Somewhere in You Silent Night” by Casting Crowns.

 

 

 

 

Oct 29

Not Your Average Survivor

It’s no exaggeration to say that Tom Wilkinson is not your average survivor.

For one thing, he’s a 16-year survivor of stage 4 head and neck cancer. And secondly, he believes he knows exactly how and why he received that diagnosis.

Rewind to 2008 when Tom, then a 56-year-old brewers grains company vice-president was plagued with earaches and a sore throat.

“The antibiotics would knock it out for a while and then it was back,” he recalls.

In August of that year, Tom was ready to lead a team of mostly young people to Germany where they would minister to the locals through a “sports and English camp.” But the day before  departure, Tom’s  new Ear, Nose and Throat specialist called with his imaging results.

“He said I needed to come in the morning for a biopsy, because he saw a tumor and I probably had cancer,” Tom remembers.

But Tom was a man on a mission–literally–and told the ENT he would get the biopsy when he returned. Ten days later he arrived for the procedure, but while he was away, a lump appeared on his neck and grew to golf-ball size.  A biopsy confirmed stage 4 tonsil cancer.

The first surgeon Tom and his wife Dee saw was pretty discouraging, so they sought out a doctor-acquaintance at their church–even though they had no idea what kind of physician he was.

The doctor said Tom “absolutely” should get a second opinion and offered to get him an appointment ASAP at the hospital where he just happened to be head of the ENT department!

An evaluation led to intra-oral surgery, a technique which uses a laser to cut through soft tissues without the usual scalpel trauma. It took 18 painstaking hours to remove his tonsils,  resect both sides of his neck and extract 43 lymph nodes.

Tom spent nearly three weeks in the hospital, followed by radiation and chemo which left him “pretty spent.” He lost 30 pounds in a month, but never needed a feeding tube thanks to Dee’s excellent management of his liquid nutrition.

At Tom’s 5-year appointment in 2013, his doctor pronounced him cured.

Like other cancer survivors, Tom is extremely grateful for “extra” time to have seen all six of his children married, 15 grandchildren born and celebrated 47 years of marriage.

Doctors said Tom’s cancer was a sexually transmitted one caused by high-risk HPV (human papilloma virus). Nearly all people are infected with HPV soon after becoming sexually active, but most infections are cleared by the body’s immune system. Studies show that multiple sexual partners increases the risk of HPV-related cancers.

“I had been wild and crazy in college (at Virginia Tech) before I came to know the Lord a few years later,” Tom acknowledges. “I had many years of indiscretions as a young man and it came back to haunt me.

“So I never struggled over why I had this: I knew why I had it,” Tom explains. “It was a consequence of my sin. I don’t believe it’s a punishment; it’s just a consequence,”

When I asked Tom what got him through the treatments and recovery, he quickly mentioned Psalm 145.

“Three or four people shared that psalm with us and it became our mantra,” he says. “I memorized it and still recite the first ten verses every day.”

I will exalt you, my God and King,
    and praise your name forever and ever.
 I will praise you every day;
    yes, I will praise you forever.
 Great is the Lord! He is most worthy of praise!
    No one can measure his greatness.
Let each generation tell its children of your mighty acts;
    let them proclaim your power.
Psalm 145:1-4

Perhaps not the average way to start the day…but then, Tom Wilkinson is not your average survivor.

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Open in your browser  and click on  the “Watch on YouTube” arrow  to hear “Praise the Lord (Psalm 145)” by Bishop Jos Tharakan.