Category: caregivers

Out of Control

My friends Jenni and Bill both admit they are planners who like to be in control. But a cancer diagnosis for her and a deployment to the Middle East for him has changed all that.

Their journey to “losing” control began in January 2025 when Jenni, a palliative care nurse practitioner, was diagnosed with kidney cancer. After more testing, the doctors told her there were multiple metastatic liver lesions…probably Stage 4.

Bill, an Air Force reserve major, who also works as a civilian for the Ohio Air National Guard, still tears up when he thinks about his wife’s diagnosis.

“The first week (after the diagnosis) the news just kept getting worse and worse,” he recalls. “That’s when I realized it was out of our hands, the control was out of our hands.”

Jenni felt so desperate that she posted on Facebook, pleading for prayer.

“We got messages from all over the world,” she remembers. “It’s humbling that people are taking your problems to the feet of Jesus.”

Despite their uncertain situation, the couple says they “never felt alone or unsupported” as their church family gathered for a “powerful prayer time” for Jenni.

After her kidney surgery, the couple had to wait 10 days for the final pathology on the liver lesions. When the report came back as benign, one of the physicians declared: “It’s a miracle the liver lesions were not cancer.”

“I truly believe prayers are what healed me,” Jenni adds.

But the physical healing wasn’t the only supernatural touch.

“I can’t even begin to explain the ways my faith was strengthened and refined through the suffering endured after my diagnosis,” she says. “I now describe my faith as ‘unshakable’ as that’s the only word that seems to come close to how I feel in my relationship with God.

“My cancer forced both of us to be in the (situation of) not-knowing and not-in-control.”

Their faith was tested again in April when Bill was deployed to the Middle East.

The couple has faced other deployments together, but Bill acknowledges: “This one was the hardest. With everything we had just gone through–my not being there with Jenni and with (12-year-old daughter) Olivia made this harder.”

It’s been especially difficult to shield Olivia from the war: “When things got hairy over there and Bill’s base was getting bombed, it’s hard to sugarcoat that,” Jenni says.

One of the ways the couple has found to keep their family close is a daily ritual before Olivia goes to bed. It’s 4 AM for Bill, but he gets up and calls his family. Together they read a devotion in Our Daily Bread and take turns praying for the family.

Jenni and my paths first crossed when one of her patients gave her a copy of 50 Days of Hope…3 months before her diagnosis. After the terrible news, Bill came to bed one evening with the book in hand and began reading it to his wife.

“We cried, but hearing other people’s stories gave us hope,” Jenni says. “I remember lying there and thinking ‘I need to get this book into the hands of every patient who walks into (my oncologist’s) office–it’s a light in the dark’.”

Bill and Jenni recently got more bad news when his deployment was extended–canceling his return home originally scheduled for this week. The couple is hopeful he will be back by January, but as he acknowledges: “I’m learning that I’m not in control, that I have to give it all to Him, and trust that whatever the outcome, it is His plan for us.”

Friends, please pray for Bill–and all those soldiers in harm’s way–to be reunited with their families.
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Open in your browser to hear the 4-minute song Control by Tenth Avenue North. © 2016 No Alibis Publishing (adm. by Fun Attic Music, LLC) (SESAC) / Fellow Ships Music (SESAC) / So Essential Tunes (SESAC) (adm. at essentialmusicpublishing.com) / Unsecret Songs (SESAC)

Celebrating My Favorite Octogenarian!

I vaguely remember when my maternal grandparents turned 80 and somewhat recollect when each of my parents reached that  milestone. But what I distinctly recall is that they all were really old!

So why isn’t my husband old as he hits the big 8-0 tomorrow?

He certainly doesn’t look his age and honestly, he has less physical ailments than I do, even though I’m seven years younger. Despite his youthful appearance and early morning daily workouts at the Y, Ralph acknowledges this birthday feels “tougher” than all the other ones because it “sounds old.”

As I tried to figure out a present which could convey how thankful and proud I am of this guy, I might have mentioned to a few people all over the country that sending a birthday card would be nice.

And I may have colluded with his men’s Bible study so they could gift him a stay at a beautiful resort where he can go fly fishing.

And I conceivably could have a family party planned with all the kids and grands this weekend.

But I want to do something more.

So will you indulge me for a few moments as I celebrate my favorite octogenarian?

My husband was born in Scranton, PA, “just like Joe Biden” as he likes to point out.

He was the only child of older parents. “I think Mom finally proposed to Dad after they dated about 15 years,” Ralph says, adding that he thinks he “might have been the second virgin birth.”

He graduated from Eastern Baptist College near Philly with a student body at the time of  525–about 75 people less than my math class at the Ohio State University.

After a sledding accident in college landed him in the hospital with a concussion, he felt “called” to become a pastor. In May of 1973, I accompanied him to his seminary M.Div. graduation in Massachusetts.  A month later, he proposed.

We only had been dating two months after meeting on a blind date, but we waited a whopping six more months more before tying the knot.

Ralph spent more than 30 years pastoring three congregations, including planting an American Baptist church in 1983, which still serves the Lord today. I wish I’d kept track of all the joyful baptisms he did. And he absolutely does the best weddings and funerals.

After retiring, he spent 10 years designing and selling church buildings. Since I retired in 2015, he takes care of many household duties –besides all his beautiful flowers outside–enabling me to have more time for writing and my cancer support ministry.

As the family patriarch, my hubby always texts an encouraging Bible verse prayer to family members each week.

At Refuge Church he’s the oldest member and still volunteers for remodeling and clean-up tasks at our new congregation’s future meeting place. He’s still as handsome as ever and he still makes me laugh–which I definitely need more of!

Shortly before we met, I made a decision that the only reason I would marry someone was if I believed that together we could serve God better than either of us could separately.

I believe that is exactly what has happened for the past almost 53 years.

And I expect it will continue…with my favorite octogenarian. Hopefully, ’til he’s 100 and I’m only 93.

I will be your God throughout your lifetime—
until your hair is white with age.
Isaiah 46:4

The song below is my blessing for my wonderful husband. Perhaps you’d like to join me in praying it over him and your family as well. (Be sure to open in your browser to hear this 3 ¾-minute version of “The Blessing” by Cody Carnes and Kari Jobe.)

 

 

 

Do You or Someone You Know Need a Vacation From Illness?

Our extended family of 14 (seven adults and seven kids) always spends a fun-filled vacation week together and this year we’ll be heading back to a lakeside home in the Poconos Mountains (a.k.a. foothills). I think most of us are counting the days until we can relax, refresh, renew…and catch more fish with Grandpa!

Ever feel like you need a vacation from whatever health trial you and your family are facing?

You probably do (or you know someone who does)—at least a mental one, if not a physical respite as well.

Believe it or not the chemo room at Dr. Marc Hirsh’s office, where I worked as a patient advocate for nearly 20 years, became a mini-vacation from illness for patients when we threw elaborate parties for two days near Halloween.

One year it was a Sesame Street theme and I obliged as Miss Piggy. (For the record, I “porked up” with eight pairs of rolled up socks under my skirt and down my blouse!)

Another year we dressed up as Wizard of Oz characters with good and bad witches giving chemo. I covered my whole yellow-clad body with a long piece of yellow shelf paper.

“Follow the yellow brick road!” I announced in my best Munchkin voice as I led patients back to the treatment room.

You’ve probably heard of the non-profit organization Make-a-Wish which grants wishes for children facing a life-threatening illness—often a trip to Disney World or a chance to meet a famous athlete or movie star, but there also are programs for adults.  

If you search “free wish-granting for adult patients” a slew of them come up. This list will get you started on vacays for all kinds of serious illnesseshttps://cancercarenews.com/more-cancer-freebies/wishes/ But don’t make the mistake I did once by searching for “adult wishes” as that’s an entirely different category!

My friend Barb Titanish and her wonderful H.O.P.E. ministry, have created a beautiful farmhouse retreat in south-central Pennsylvania where folks can have a vacation from cancer. The 18-acre site has a beautiful farmhouse, a swimming pool, peaceful walking trails, a tranquility garden and a fire pit . Folks can come for three to five days. https://hopelifeline.org/application-for-haven/ 

“Whether you are just diagnosed, starting a new treatment or at the end of life, you need to give yourself a break,” says Barb. 

You also can create a mini-vacation from illness right in your own home. Declare every first Friday of the month to be “Cancer-Free Friday” where you only watch funny movies and no one is allowed to mention the “C” word. Or plan an outing for the day—a backroads ride with a picnic or an ice cream stop. Perhaps a mani-pedi and a tea room. Or maybe an afternoon hitting golf balls and eating BBQ.

Ask yourself, what would help your mind/body/spirit to take a vacation from whatever you’re facing? Pray about it and ask God how you or someone you know can make it happen. People cannot read your mind so let those who have asked to help you know what you really need. You deserve a break today…and I’m not thinking McDonald’s.

When they walk through the Valley of Weeping, it will become a place of refreshing springs.
The autumn rains will clothe it with blessings.
Psalm 84:6

Adapted from Peace in the Face of Cancer ©2017 by Lynn Eib

P.S. I’d love for you to leave a comment about vacation plans you have for any kind of R&R this summer!)

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Open in your browser to hear Refresh Me by Leeland

When “Normal” is No More

June 2020, first grandbaby

May 29, 2024, started out as a normal day for my dear friend Karen. She was ready to leave for her secretarial job at her normal time of 6:30 AM. She kissed her husband Tim goodbye as she normally did. He was in the kitchen making his normal cup of coffee.

No one knew it would be the last “normal” day of Tim’s life…or of Karen’s.

Apparently shortly after she left, Tim walked into the adjacent living room and collapsed with a massive stroke–his coffee still untouched.

And so began months of doctors, procedures, hospital stays, rehab…and prayers. First, that Tim would survive, and then that despite his left side paralysis, he could regain some physical abilities.

Tim worked tirelessly at long, intensive rehab sessions. It was really tough, but he made slow, encouraging gains.

Meanwhile, Karen started spiraling down.

“There are a mountain of things that are now my responsibility,” Karen texted me in June 2024.

I knew from our four decades of friendship that Tim, a Navy veteran and retired tool and die maker, took care of most of the household responsibilities–financial affairs, yard work, cooking, cleaning, car maintenance.

There was no time for Karen to grieve what the couple had lost. Being Tim’s caregiver was like another full-time job, as she tried to figure out what he could and couldn’t do, what he needed from her, and how to get help for both of them.

“I’m mostly imprisoned in my own house because Tim cannot be left alone and we can’t travel easily with a wheelchair,” she explained in an August 2024 text.

The normally witty, fun Karen slid into a very deep depression.

“I have failed my husband and my Lord so badly,” she told me. “I’ve been so broken, so angry and so resentful. Tim is still as sweet as ever…I am not.”

Karen saw a psychiatrist and started on an antidepressant, but there was no quick fix.

Almost two years later, not much has changed about the couple’s circumstances, but finally she can see some light–thanks to medicine, counseling and prayer…especially the prayers of others.

“Had I not been surrounded by good Christian friends and family praying for me every day, I am convinced I would still be in the darkness of depression and anger because I simply could not pray,” she explained.

Early on after the stroke, Karen said that she believed “one day I will be able to tell a triumphant story of Tim’s recovery.”

March 2026

I agree that Tim’s survival and recovery has been a miraculous one–especially as he has maintained much of his memory and all of his lovable personality.

But I wanted to write about Karen today because I believe she has a triumphant story of continuing recovery from the depths of despair.

I know she sees “failure” and “shame” in her life, but I see raw honesty, which always pleases God.

 “I’m clawing my way back one prayer, one verse at a time,” she confided.

If you or someone you love has ever struggled with depression, you understand how dark it can get. Maybe you or your loved one has a chronic illness/condition and realize life never will be “normal” again. Perhaps, like Karen, you are a worn out caregiver.

I hope you will join Karen in “clawing” your way back. Crying out for God’s strength and clinging to His loving promises…even from the depths. That, my friend, is how triumphing over darkness begins.

Deeper and deeper I sink into the mire; I can’t find a foothold.
I am in deep water and the floods overwhelm me…
Answer my prayers, O LORD, for Your unfailing love is wonderful. Psalm 69:2, 16

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 Please open in your browser to hear the song which Karen listened to in her darkest moments:
Desperate by Jamie MacDonald (with Lauren Daigle) © 2024 Capitol CMG, Inc.

Who’s Taking Care of YOU?

Do you know what to do if you’re on an airplane and there’s a sudden loss of cabin pressure?

Image by Orna from Pixabay

Scream? Pray? Help other passengers?

All good ideas, but if you paid attention to the flight attendant before takeoff, you know to “secure your own oxygen mask first before you help others.” 

Thankfully, I’ve never been on a plane experiencing a sudden loss in cabin pressure, but hearing a diagnosis of cancer or facing some other life-altering situation in your life or your loved one’s certainly can make one feel faint.

It’s common for folks to feel exhausted while caring for a cancer patient…or aging parents…or special needs children…or a loved one with a chronic condition…or grandchildren caught in a nasty divorce. The weeks, months or even years of loving support can weary anyone.

Many years ago I remember being awakened–yet again– in the middle of the night hearing my father-in-law in his bedroom below us. When I checked, I found him sitting stark naked on the bed. I asked him about his clothes to which he replied: “Ralph took them off.”

I redressed him, went back upstairs, chided my husband for disrobing his dad and tried to get back to sleep before I had to get three little girls ready for school.

I’ve been a caregiver for family members—either unwell physically or mentally—for most of the past three decades. I’ve had a relative with dementia living in our home for years and I’ve made bi-weekly seven-hour car trips for months to be with a relative undergoing chemo. I’ve been so physically fatigued I had to literally crawl up the second-floor stairs and I’ve been so emotionally exhausted I’ve spent hundreds of dollars pouring out my woes to a counselor.

Being a caregiver is incredibly hard…I get it.

But I also know we make the task even more difficult when we fail to take good care of ourselves. Do you know what Jesus said the two most important commandments are? First, “Love God with all your heart, soul, mind, and strength” and second, “Love your neighbor as yourself.”

Don’t miss those last two words: “as yourself.” It doesn’t just say to “love your neighbor.” It says we need to love ourselves. In fact, we can’t really love other people if we don’t love ourselves.

It is not selfish of you to do something refreshing, rejuvenating or relaxing for yourself. You cannot “fill up” your loved one when both of you are running on fumes. 

I remember when I settled my mother’s estate after she lived the last years of her life in a wonderful continuing care retirement community. There was a whopping $900 left.

I gave our three girls $100 each and told them to treat themselves. I gave my brother $300 and told him to do the same. And then I took my $300 and went to Hershey Spa for the day. I’m positive that my mom–a very frugal person–approved of my splurge.

If you can’t leave your family member alone, this is the time to call in one of those offers of help that others have made.  Watch a funny movie, enjoy a massage, go fishing, get a pedicure, take a walk, hit a bucket of balls, catch a nap. Do something to lift your spirits so afterward you can once again lift someone else’s.

And please cut yourself some slack as you wait for your caregiving burden to ease.  Here’s a prayer from the song “Make it Well” by MercyMe*:

I need a peace that only Heaven knows
Jesus, could you please
just sit and cry with me
Till I can sing
Till I can sing

It is well with my soul.

++++++++++++++++++Excerpted from Peace in the Face of Cancer ©Lynn Eib 2017+++++++++++++
* Please open in your browser https://www.youtube.com/watch?v=xLrF-ml7uks&list=RDxLrF-ml7uks&start_radio=1  to hear  “Make it Well” by MercyMe (from their new film “I Can Only Imagine 2” in theaters Feb. 20).